nikkiblu-bih.blogspot.com I have Intracranial hypertension- a brain disease that has no cause and no Cure YET… help me raise awareness and together we can find a cure… visit my blog and share this video with your loved ones and your Doctors… Some symptoms – Numb toes, feet and fingers while lying in bed. Pins and needles as well. Pressure behind eyes, eyes tearing. Visual disturbances. Feeling of pressure in head, feels like my brain is being squashed Forgetting words, little one’s like pen. Loss of short-term memory – what I am doing, where am I? Vertigo, loss of balance with eyes shut. Tailbone aches for hours Back of neck aches. Headache, 24 hours a day. Migraines on a regular basis. Double vision Thrumming noise in ears (actually the sound of my own heartbeat). Lethargy that lasted months. Visual blackout that lasts several seconds after standing up. Dizziness on standing/squatting. Eyelid twitching, small mini seizures involving arm, leg or head movement. Dry mouth. Water retention – fat , sore feet Weight gain. Night blindness. Non-thought, when you try to think through a head full of cotton wool. Feeling of disorientation/confusion. If you have more than 3 of these Symptoms please see your Doctor and ask for a refferal to see a Neurologist (study’s the brain) or ophthalmologist (who will be able to look into your eyes and see the pressure on your optic nerves). The only way that IH can be ditected is from a lumber Puncture the needle in your spine is hooked …
Video Rating: 4 / 5
Dr. MonHulland received Cranial adjustments for facial asymetry, bruxism or teeth stress or mis-aligned bit. We saw dramatic changes in his facial bone structure. He was breathing better and felt he looked better with a wider palete. He regularly refers me patient’s who are diagnosed with migraine headaches and trigeminal neuralgia, facial pain, chronic headache, cluster headaches, atypical migrains, facial migraines. Many seen by several neurologists including, Mayo clinic, and many other specialist. some have constant pain behind thier eye. Many will traveled half way across the country to see Dr.Lieurance, Cranial expert, for NCR or NeuroCranial Restructuring, chiropractic neurology. Our treatment involves adjusting the sphenoid using endonasal balloons along with specific body positions. This is a functional neurological treatment which released connective / meningeal / dural restrictions or adhesion’s. There was instant relief after the second treatment. Also free’s up the area around the orbit of the eye for better circulation of blood flow and lymphatics. We often see improved balance due to the influence to The cerebellum by improving the frequency of firing of shunt stabilization to spine and postural stabilizing musculature which communicate to the ear and brain to maintain proper balance under gravity. This treatment was first discovered by Stober ND then Dean Howell refined the technique. Dr. Lieurance is a Chiropractor in sarasota, Florida. Advanced Wellness …
Video Rating: 5 / 5
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TRY HYPERBARIC OXYGEN THERAPY FOR THIS DISEASE
There are many clinical studies of non-invasive intracranial pressure measurement methods currently being implemented; I hope there won’t be need of Lumber puncture anymore.
Hi, last month i found out i have this just before i almost died. The pressure in my head was over 70. I am 20 years old and i had to have the shunt put in my brain to save me from daily lumbar punctures. I never knew this existed until i started going blind after surgery my sight has been coming back slowly but surely. I don’t know yet if there are things i wont be able to do which kind of scares me.
Hi. Great video! I’m having my second lumbar puncture done tomorrow under anesthesia after going onto shock during my first one. I’m on Acetazolamide and HCTZ, managing ok. I’m looking into alternatives like bariatric and endocrinology. I refuse to have a bad situation made worse by the shunting. I’ve been watching tons of vids and no one has anything positive to say after shunt surgery. That would be my last resort. It feels good to know that I’m not out here by myself.
We need more awareness like this. We suffer everyday and it’s about time people realised what an awful condition this is!
@shirleysw21 It’s okay to be scared, i am very scared by needles and i hated having lumbarpunctures. As long as you have a decent doctor doing the procedure you are fine..i have learnt that from experience. Sadly i have asked that question about being put to sleep to have the lumbar puncture done but the response i got was that it was too dangerous, there is the big risk of simply not awaking. You can get through this.
You are not alone. I am coming up to my 11th month of having IIH, It took the doctors 8 months to finally diagnose me and in that time i was hospitalized twice. To date i have had 3 lumbar punctures… with opening pressures of 38, 49, and 39 in that order. Are you on Acetamalomide? thats what i am on but i get tingling sesnsatiosn in hands and feet and i hate it. Neurologist has mentioned the possibility of a shunt a few times but i am scared…i want this to stop…
You’re not alone & either am I! Thank you for putting this together – will pass it on! -3
I have PTC/IH. My MRI was normal, but my CT scan showed the excess fluid. I just started topamax. Are you on topamax or have you been? If so what was or is your experience with it? I have not had a LP yet, but my Neuro did make mention of one at my appt. today. He said he will see what course of action to take when I see him again in 2 weeks.
I just been dianosed with this but do I have to keep going through this again? Is still don’t have an answer except that the white blood cells were too high and they couldn’t get a pressure reading. Can I be put to sleep for them to do the Lumber pucture? I’m sorry I’m just not strong has most people and it just hurts too much to do more than once. In all I’m still scared.
I have this and it has blighted my life in ways i can’t even begin to describe….
Hi..so i have several symptoms..i just got my MRI done yesterday 5/3/11.. and i get my results 5/13/11
@deedraann89
I too was diagnosed on March 11, 2011! I’ve had headaches for 13 years. I’ve had numerous MRI’s and all have shown nothing except for the one I had on March 3. I also had an MRV (shows veins, arteries, more in-depth), it showed that my brain has herniated. My Neurosurg is scheduling a stent placement within the next week. I’m a praying woman! I will be praying for all of you with this. Let’s find a cure!
I have had IIH for over 10 years due to a head injury. I have a VP Shunt, but I still have daily headaches. I am a human barometer. I look forward to the time when I can be pain free, but I don’t know when that will be. Sometimes I wish I could have a brain transplant. I would just like to have my life back.
Very useful information….! thanks for upload this video…!